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When I was 21 and lining up for my 4th open-heart surgery, I was terrified! Not only did I have to face yet another surgery, but this time I also had to do it while holding down a job and going to uni. I had NO clue how to tell my boss, negotiate leave (what my leave entitlements even were), how...
Living with a chronic illness brings a unique set of challenges—especially when it comes to navigating your career. While many people focus on the physical aspects of managing a health condition, the professional impact is often overlooked. Here are five surprising ways chronic illness...
If you’ve ever wondered whether you can have a career while managing chronic illness, let me tell you this: you absolutely can. But it’s not as simple as "just pushing through" or "finding the right job." The reality is more nuanced, and that's what we’re diving into today.
The...
At this time of year, there’s a lot of noise about New Year’s resolutions and fast-track goal-setting programs. While these approaches can be exciting, they often overlook the beauty of slow, steady progress—a particularly vital perspective for those managing chronic illnesses....
The holiday season can be a wonderful time filled with family, friends, and festive cheer. But for those of us living with chronic illness, it can also bring unique challenges: packed schedules, increased stress, and the struggle to balance enjoyment with energy conservation. The good news? With...
When you’re living with a chronic illness, life often feels like a marathon, not a sprint. Between doctors' appointments, managing symptoms, and staying on top of your daily life, it’s easy to feel like the hurdles just keep coming. And, with the world throwing us its fair share of...
When it comes to managing chronic illness, most of the advice out there focuses on the physical: medication, treatments, and endless doctor appointments. And while these are essential, I’ve learned the hard way that they’re only half of the equation. What’s often missing is the...
I was in my late 30s, sitting at my desk, staring blankly at the screen. My body felt like it was shutting down—overwhelming fatigue, brain fog, and complete lethargy. But the worst part was my mental state. I was completely overwhelmed and on the verge of losing my job. My mind was...
If you’re living with chronic illness, you’ve probably built a handful of go-to coping strategies over the years. Maybe it’s rest days when your body needs a break, or distracting yourself with a book when pain flares up. For a while, these strategies may have been...
When we think about chronic illness, most of us focus on the physical symptoms—pain, fatigue, and discomfort. But there’s a powerful, less obvious factor at play: your brain. Neuroscience shows us that the brain and body are in constant conversation, and when you’re living with...
Planning a holiday should be exciting, but if you have a chronic illness, there’s often a bit more to think about. While the thrill of getting away is real, keeping yourself safe and healthy on your travels is just as important.
You don’t want to find yourself stuck overseas, needing...
For years, I’ve carefully balanced two distinct worlds. One is my personal life with congenital heart disease (CHD), navigating countless medical appointments, surgeries, and the daily realities of living with a chronic condition. The other is my professional world, focused on policy,...
